Sleepless in Seattle

A cliché title, I know, but here is a (new) normal night in the Ortiz home:

TJ is put to bed between 7:30 and 8pm (7 if he skips his nap) and we check his CGM to see where his sugars are (or what they are doing—going up or down, fast or not)

Gabriel goes to bed around 9 or 9:30pm (in his own bed! J ) and then we check on TJ’s CGM. If he’s low or dropping fast we check his BG with his meter to verify and then give 4-17 carbs depending on where he’s at.

I try to go to bed by 10pm (usually Tony stays up later) we check TJ’s sugars (and calibrate his CGM if his BG is not going up or down). If he’s low or dropping fast we give 4-17 carbs depending on where he’s at.

Tony goes to bed around midnight and checks on TJ’s CGM (Treating lows with carbs and dosing insulin for highs). Gabriel wakes up around this time (and his hungry) I feed him a 6 oz bottle of formula and cereal (hoping to fill him up so he sleeps even longer). Then I go back to sleep (usually by 12:10am).

At 2 am Gabriel wakes up and fusses, but usually goes back to sleep within 5 minutes on his own. Once again, one of us goes to check TJ’s pump, to make sure he’s doing ok.

Gabriel wakes up again (and hungry) anytime between 3:30 and 5am. Another bottle puts him back to sleep quickly. Tony feeds Gabriel while I go check TJ’s CGM again.

Every time one of us deals with one of the boys the other wakes up, whether to find out what TJ’s numbers are or because of Gabriel’s noise. Obviously we are erring on the side of caution with TJ, but 1 in 20 diabetics dies from low blood sugar levels and the most likely time for that to happen is at night, because he’s not awake to tell us he doesn’t feel good.

Hopefully his sugars will stabilize at some point and be more predictable at night and Gabriel will sleep for longer than his 2-4 hours at a stretch. Until then, expect us to be very tired! 😉


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